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The Long-Awaited Update to Section 504: A Monumental Step for Disability Rights


Hello everyone, Jensen Caraballo here. Today, I want to talk about a significant development in the realm of disability rights. On September 7, Secretary Xavier Becerra announced that the Department of Health and Human Services (HHS) is proposing updates to its Section 504 regulations. This is a monumental step forward, one that has been long overdue. Let's delve into what this means for the disability community and why it's so important.

The Significance of Section 504

Before the Americans with Disabilities Act (ADA) came into existence, Section 504 of the Rehabilitation Act served as the primary legal tool to defend against discrimination in federal programs. It laid the groundwork for the ADA and has been a critical instrument for disability rights since its implementation in 1977. Section 504 applies to all federal programs and any program receiving federal funds, making it a broad-reaching regulation that impacts numerous aspects of life for disabled individuals.

Why the Update is Crucial

The world has changed dramatically since 1977, and yet, the regulations under Section 504 have remained static. This has led to gaps and inadequacies that make it less effective in addressing the current challenges faced by the disability community. Secretary Becerra acknowledged that these updates are "long overdue," echoing the sentiments of disability rights advocates who have been pushing for this for years.

What the Updates Entail

The proposed updates are comprehensive, covering a range of issues that are critical to the disability community:

- Disability Discrimination in Healthcare Settings: Ensuring that healthcare providers do not discriminate against disabled individuals.

- Organ Transplants and Life-Saving Care: Addressing the discrimination against disabled people who require organ transplants or other forms of life-saving care.

- Measuring Treatment Value: Ensuring that the value of treatment is measured without discriminating against those who may never be "cured."

- Accessible Medical Equipment: Making medical equipment accessible to all.

- Accessible Communication: Ensuring that healthcare settings are equipped to communicate effectively with disabled individuals.

- Child Welfare System: Addressing discrimination against disabled individuals within the child welfare system.

- Community Integration: Promoting the integration of disabled individuals into the community.

The Role of Advocacy Groups

Organizations like the Autistic Self Advocacy Network (ASAN) are playing a crucial role in scrutinizing the draft regulations and preparing thoughtful comments. Their motto, "Nothing About Us, Without Us," encapsulates the essence of what disability advocacy should be about: ensuring that the voices of disabled individuals are heard and considered in all decisions that affect us.

The Road Ahead

The process of updating these regulations is complex and slow-moving. However, the commitment from HHS and the Biden administration to enforce these rules once enacted is a positive sign. It is now up to us, the advocates and the community, to hold them accountable and ensure that these regulations truly serve their intended purpose.


The proposed updates to Section 504 are a significant milestone in the fight for disability rights. They align well with the broader goals of ensuring that disabled people have access to home and community-based services and support. This is not just about updating a set of regulations; it's about affirming that disability rights are human rights. And in that spirit, we must continue to advocate, scrutinize, and push for a more inclusive and equitable society.

Thank you for reading. Let's keep the conversation going and work together to make these proposed changes a reality.

Jensen Caraballo written in cursive.

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